So often (daily, hourly and many times every minute) I think about Charlie and Down Syndrome. Okay, wait. I don't mean I think "poor Charlie ....." or "he'll never do....." or fill in the blank. I just never thought about getting my girls to actually pick up the food on the highchair tray- they just did it. I never thought about or tried SO HARD to get my girls to stay on hands and knees for 30 seconds without falling- they just did it. I never worried about heart defects and whether or not oral motor skills would be compromised if I took away the bottle at a year with the girls- they were non issues for our family until a year ago.
And now here we are with the most incredible blessing (along with my girls, of course:) that this mommy could have. We are reminded daily of the struggles that Charlie will face both with his own body and the world outside it. Please do not think I am complaining- I would do this over and over again (and pray that we will)!! It's just sometimes I become so consumed with Down Syndrome that I don't remember my life without it. Nor would I want to.
I read this a few moments ago and cried. True, Charlie will always have Down Syndrome but we do not have to remind him of that. I hope and pray that most days he doesn't even notice. I pray that when he forgets about it that someone doesn't remind him. Charlie is Charlie- a little angel full of love, hugs and smiles....and SO MUCH MORE!
Please, take a moment and read this. This boy "forgets" and doesn't even realize how many lives he's changing.
In Him,
E
5 comments:
I went and read it and had to come back and tell you that it really touched me. Really a great story!!!
happpy tears!!! that will preach ; )
I too understand the not thinking about it, only being remind sometimes when I see little ones younger than mine and they do things with such ease...but I too have no regrets..love my babies : ) thanks for sharing
I hope we learn to forget too as Mommas, Daddys, sisters, brothers and society!! I have a friend whose daughter is 9 and she says you do forget about the DS. So, we continue to walk by faith not by sight! I'm catching up on blogs here and there while Parker rests. I'm humbled by the prayers. Tears coming now! zipper pic coming soon! XO Lara & Parker!
HUGS for E.
BIG HUGS.
Hope that comforts you, all the way from Malaysia.
God loves you, E. I'm inspired. Much.
He is such a precious miracle and I know that God is going to use him mightily!!!
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